Post by Michelle on Nov 20, 2008 6:58:24 GMT -5
Hi Fellow Members
Thanks for a very informative and supportive site. My daughter Kahli was diagnosed with Perthes 3 weeks ago...2 weeks shy of her 4th birthday. Until this time I had never met anyone who has had Perthes let alone heard of it before. I know we are in for a long rocky ride, but we are as prepared for it as we can be. We have been told that the younger the child the better the outcome, so we have our fingers crossed. So far Kahli walks with a slightly awkward gait and after a busy day playing she complains of soreness. We are trying to limit her weight bearing activities as much as possible without wrapping her up in cotton wool, but as you can imagine keeping a 4 year old still is not an easy task.
She starts swimming 3 times a week as of Monday so I'm hoping it will assist in the aid of correct regrowth when it actually starts to happen.
I am not new to hip problems, my oldest daughter who is now 20, was born with Spina Bifida and her hips were subluxed. When she was 2 she had bilateral osteotomies so I have had experience with hip spikas and surgeries etc. She is now in a wheelchair permanently, but is living a very full and happy life.
I have learned to be positive with the curve balls life throws at us and I'm grateful that Kahli has a problem that will eventually get better, there are so many children out there who have so much worse to deal with.
I look forward to updating you all with Kahli's progress and also catching up with all your posts as well. I'm sure I will be visiting here on a regular basis. There are no support groups here in Australia, so it looks like I will be asking most of my questions in here.
Michelle
Thanks for a very informative and supportive site. My daughter Kahli was diagnosed with Perthes 3 weeks ago...2 weeks shy of her 4th birthday. Until this time I had never met anyone who has had Perthes let alone heard of it before. I know we are in for a long rocky ride, but we are as prepared for it as we can be. We have been told that the younger the child the better the outcome, so we have our fingers crossed. So far Kahli walks with a slightly awkward gait and after a busy day playing she complains of soreness. We are trying to limit her weight bearing activities as much as possible without wrapping her up in cotton wool, but as you can imagine keeping a 4 year old still is not an easy task.
She starts swimming 3 times a week as of Monday so I'm hoping it will assist in the aid of correct regrowth when it actually starts to happen.
I am not new to hip problems, my oldest daughter who is now 20, was born with Spina Bifida and her hips were subluxed. When she was 2 she had bilateral osteotomies so I have had experience with hip spikas and surgeries etc. She is now in a wheelchair permanently, but is living a very full and happy life.
I have learned to be positive with the curve balls life throws at us and I'm grateful that Kahli has a problem that will eventually get better, there are so many children out there who have so much worse to deal with.
I look forward to updating you all with Kahli's progress and also catching up with all your posts as well. I'm sure I will be visiting here on a regular basis. There are no support groups here in Australia, so it looks like I will be asking most of my questions in here.
Michelle