|
Post by kalesmum on Sept 10, 2008 1:11:55 GMT -5
Hi My son Kale has bilateral perthes he had a arthrogram on his left leg which showed hinging on femoral head within acetabulum. What happens next ? Kales right leg is in the third stage Healing Naomi (kalesmum)
|
|
|
Post by Donna Brown on Sept 10, 2008 17:19:14 GMT -5
Hi Naomi
Welcome to the message board.
I read your introduction of Kale and as I understand he is just over 7 years old. Hinged abduction needs surgical intervention, to get the femoral head back inside the acetabulum (socket), so it can form properly and without pain.
For the femoral head to be hinged, it would need to be either coxa magna (too big for the socket), or subluxing (partial dislocation) - either one of these needs attention a.s.a.p.
There are a number of alternatives for surgery and it will depend on where you are, as to what your possible choices will be - femoral or pelvic osteotomies are most commonly offered, although there are some surgeons doing the external fixator too. Can you contact me directly at perthesnz@yahoo.com.au so that I can help with getting more information and maybe being able to link you with other perthes families, for support?
All the best
Donna
|
|
|
Post by kalesmum on Sept 10, 2008 18:26:32 GMT -5
Hi Donna Thanks I have E-mailed you Naomi
|
|
|
Post by kalesmum on Oct 14, 2008 21:38:08 GMT -5
Hi Donna,
Up date on Kale you are so right surgery is needed. We are waiting for a date for kale to have part of his femour removed to straighten his leg.( femoral osteotomies).
Then in two years when they remove plates and pins they will give him a shelf bone graft.
So we playing the waiting game.
Naomi ( Kalesmum)
|
|
|
Post by Donna Brown on Oct 16, 2008 22:53:25 GMT -5
Hi Naomi
I am glad that you have a plan of action now. No-one wants to go down the surgical route, but we need to do the right thing by our kids and if surgery places the femoral head in the right position for optimum results longterm, then so be it.
The osteotomy is a 'tried and true' procedure that has a proven track record. You will be well supported by the physio and surgeon, so Kale will do well. The hardware removal surgery is a walk in the park, in comparison to the osteotomy, which at the most will require an overnight stay in hospital (depending on what time of the day its done and how well he comes back out of the anaesthetic). My experience of this, with my daughter, is that they re-open part of the original scar to remove the hardware through, so there are no extra scars to skite about (which for a girl is good, but for a boy is maybe not so good LOL!!).
Whether or not the shelf procedure is needed, will depend on how well the osteotomy works, but again, its another proven treatment, with lots of perthes kids having had it, with good results.
All the best
Donna PS: I reckon the waiting is the worst part sometimes!
|
|
|
Post by kalesmum on Dec 15, 2008 1:30:07 GMT -5
Hi Donna, A note to let you know how its going. Kale had his op on the 4th of november and all went well. WOW kale was great. (kids aye) Now we are doing hydro therapy which helps lots, Kale loves the fact he can run in the water, we go three times a week for hydro therapy and four times a week for fun this helps kale to sleep all night. Kale is now of all meds Yeepy Thanks Donna you have helped me heaps
|
|