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Post by Donna Brown on Apr 27, 2007 23:38:46 GMT -5
I've set up this message board so that families with a new diagnosis have somewhere to ask questions and get the help they need, or at least pointed in the right direction for that help.
For teens and adults who are wondering what the future holds for them with regards to ability to work, have a family or any other issue that is troubling them.
And for the older adults who are now experiencing health issues either directly or indirectly attributable to the damage that Perthes did to them as children, or the surgery(s) that were necessary to help them.
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Post by Donna Brown on Aug 14, 2007 19:46:25 GMT -5
We have had a number of new members join the board and I would like to welcome you all!
I would also like to encourage you to share your stories and any ideas of what has, or hasn't worked with regard to treatments or therapies, and anything else that might help a newer diagnosis person, make their way through the minefield that is Perthes.
Unfortunately, there is no 'cure' for Perthes, nor is there one set treatment protocol that is guaranteed to work. Each case of Perthes is as unique as the child that gets it, so the treatments have to be tailored to that child and their family.
But there are things that can help along the way - therapies that help with pain management and ROM (range of movement), alternative quick fix ideas that can help if your child isn't sleeping well because of the pain. Have a browse around the threads and see what you think and if you wish to offer information, or to ask questions, please feel free to do so.
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